Life with Sensory Processing Disorder
Monday, January 27, 2014
Friday, January 24, 2014
My Perspective on the Battle Over Marijuana Legalization
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One might argue that if legalized it can be ingested, yeah, but many are still going to smoke it. And even if it is only legalized for medical use, that means my very close neighbor who has kidney cancer can sign up, get a card, and grow two plants in her back yard and smoke it outside and I will be stuck inside my house, won’t be able to open my windows on warm days, won’t be able to step out to let my dogs go to the bathroom unless I want to get sick. Her second hand smoke may irritate my lungs, give me cancer, hurt my sinuses and there will be nothing I can do to protect my own health and well-being. Dogs have died and gotten extremely ill from ingesting marijuana, so should she accidentally drop part of the plant, a joint/roach, or a leaf blows in my backyard, it could kill my dogs.
I will admit I have tried it myself in my teens and twenties. And I can say from experience it made my anxiety and insomnia a million times worse and did nothing for my pain & SPD issues.
A woman in one of my SPD groups who lives in Colorado has said her family has always relied on public transportation and now that marijuana has been legalized it is smoked openly in public and sometimes even on the bus. While someone may get kicked off the bus or may smoke it right before getting on, they bring with them the horrible smell. She can no longer ride the bus because her 10 year old son has Sensory Processing Disorder and the smell hurts him and he gets sick and has extreme meltdowns. They now have to pay more to take a taxi and she fears they will encounter the same problem and may have to move since they cannot afford a car at this time.
A friend of my husband's with lung problems lives in Washington and has complained of the same thing. He doesn’t own a car, has always taken the bus to his job and around town. But now that pot is widely smoked, drunken young people at night take the bus and sit in the back and smoke pot. They exit before they are caught or thrown off, but the smell lingers and he gets sick and cannot breathe, coughs, and has to take medicine.
So please tell me for those of us who have breathing problems, illnesses, disorders, Autism - why would we ever want this legalized if it is going to hurt us? Many people already are so self-involved, inconsiderate, ignorant, so now they can kill off more brain cells and make others sick too? I have several acquaintances that have husbands that smoke pot like it is air and have done so for 15-20 years or more. They both have that ridiculous Beavis and Butthead huh huh laugh. Neither is very intelligent, has a good job, or really anything to show for their life. They live to smoke. They might argue it is their right. I think they have the right to do whatever it is that makes them happy, if they want to be a brain dead twit, so be it. But when it starts hurting others, making others sick, affecting the well-being and lives of those who value their life, their brain, their health, there lies the problem and my belief that it absolutely should not be legalized because it is not your right to make others sick.
If it can be used to help one medically, then it should be in pill, oil, or another form that will not affect others in any way and dispensed only by a medical doctor. I believe it should not be grown, stored, or sold to anyone other than a person with a medical license.
A person I went to school with is fighting to make medical marijuana legal in our state because she wants to try it on her daughter who suffers horrible seizures. I understand her plight, but once you open that can of worms, you cannot close it. Without strict regulations, it will affect others negatively, even if legalized for medical use only.
For once I am happy I live in a state run by Republicans that are actually pushing to get tougher on pot possession! I know there will come a day when all of it will change and it will be legalized, and honestly I don’t know what the heck I will do, because it could drastically change my life negatively. I already don’t go out much due to my symptoms. I struggle most days just to be pain-free and “normal”. I know how pot directly and indirectly affects me, and it physically hurts & makes me sick.
Labels:
Adult Sensory Processing Disorder,
Autism,
breathing problems,
decriminalization,
legalization,
marijuana,
medical marijuana,
my perspective,
offensive odor,
pain,
pot,
reaction,
regulation,
sick,
SPD
Monday, January 20, 2014
Hypoglycemia
I apologize for the Browser problems, the font size and spacing is appearing funky - it is unintentional, so please bear with me...
I
was relieved to read that SPD can lead to Hypoglycemia. I guess that is an odd
thing to say, but over the past 5-6 years I have had on again off again issues
with low blood sugar. SPD & the stress from it throws off your sugar levels
and can lead to Hypoglycemia. When your body goes into fight or flight mode you rapidly burn through glucose. It was a relief to find out why this was
happening to me. If I don’t eat every 3 hours I can have a
low blood sugar episode. I will get light headed, dizzy, feel faint, get shaky,
have uncontrollable muscle spasms & jerking, get confused, can’t think, get
very upset, panic, cry, have heart palpitations, can vomit, sweat, and get
overheated. It doesn’t happen regularly, so I never know when to expect it. I
can go months without an issue even if I eat poorly, skip a meal, or not eat
enough. Many times I will go months without an incident and then BAM! I have
one and it is so extremely scary.
When I have a problem, it tends to be hard to correct over
the next few days & I will be prone to episodes and it feels like a roller
coaster. After an episode I feel like I’ve been run over by a Mack truck. My
body will hurt, I will have bad headaches, I feel run down and worn out. I’m so
afraid I will have a seizure, which can happen. I’ve had pretty bad Auras. I
was told when I have an Aura I should go to the ER and get a monitored
injection of Imitrex, but I don’t, since when I used to it never helped and only added to my stress.
Friday, January 17, 2014
New Browser Issues
My new browser is not supported by Blogger, therefore it is acting funky, giving error messages, and not allowing me to post photos. Not sure what to do at this point, I'm not going to switch or back track to an older version. Hopefully it will publish this post without errors.
Anyway, I am recovering from being sick, we lost a beloved pet, and I am starting a new project, so I may not be back for a bit.
Sunday, January 5, 2014
Our trip to see Amma
As I mentioned in my last post, the author, Ted Zeff, is a
follower of Amma and he mentions her a few times in his below mentioned book along with the
healing power of touch & hugs for those with SPD.
We had seen a news piece on Amma; her teachings, message of
unconditional love, hugging millions of people around the world and saying
prayers for them. It sure sounded cool – someone selflessly going around
hugging everyone spreading a message of love & hope. After more research we
decided to experience it for ourselves & receive Amma’s Darshan (blessing) since
she was going to be only a couple hours away.
We arrived early, received our token, and waited in line for
about an hour and a half before being let into a large conference room barefoot. Once
inside they had everyone gather and sit on the floor in lotus pose, preparing
for Amma’s arrival and the start of a group meditation. My husband and I sat
rather close to Amma’s center spot, while my mother, having knee problems, sat
further back in a chair. There was a quiet but exciting buzz in the room. Some
of her followers are a bit overzealous. Telling us that Mother knows all, sees
the future, she will heal all, we will become followers and see her yearly once
we receive her love & hug. I will admit I was kind of freaking out thinking
what did we get ourselves into, is this some kind of cult? But once Amma
entered the room, you could feel such a warm, positive energy, such excitement,
and a low vibration. It was strange but neat. Amma radiates a peaceful glow and is very
beautiful – pictures do not do her justice. Once she was seated they began the group
meditation with a large stretched out Om chanted by all – which was so cool
because you could feel this sound, the vibration was so intense, felt like it
penetrated your entire body, fingers, toes, hair. Even my husband, who does not
have any type of SPD issues, said he felt it quite strongly. It was amazing. So
once the meditation was over they have people get in two lines in front of
Amma. You kneel and crawl forward as you wait for your turn. My mom again
having knee trouble was able to go first in a line for disabled people and she
was not required to kneel or crawl, was able to sit in chairs and then
stand/bend over for her embrace. I watched as she was hugged and they say Amma
may offer extra prayers, hugs, etc if she feels inclined to do so and with my
mom she grabbed her a second time and hugged her hard, praying for her. My mom
started crying uncontrollably and said it was a very emotional experience for
her and she doesn’t know why it made her cry.
But it had an impact on her and she still talks about it. I started feeling anxious, not knowing what to expect
or how I would feel. Then it was our turn. As we crawled forward, I felt so nervous,
wondering will this make me cry like it did my mom? As we hit the front of the
line, they take your token and you are guided forward into Amma’s arms. You
lie across her lap kind of with your head to the side facing away from her on
her shoulder and she wraps her arms firmly around you. In my hand Amma placed a flower, some candy, and
hugged me deeply while rocking me and beginning a Hindu prayer I made a note of
to remember, so I could look up what it meant later. Now my husband and I
shared the same experience during our individual embraces – it felt like a
boost of positive energy, and our minds went completely blank – no thoughts, no
anxiety, everything went away – sounds, smell, time. At the time it felt as
though I went limp in her arms and became a happy blob. I was the only one to
receive the prayer I did, I don’t believe she said a prayer out loud for my
husband, but said a different one for my mom. When I was home I looked it up
and amazingly it applied to me, my situation at the time and a problem I was
having.
When she is finished you are guided to the side where you
can sit, reflect, recover, before being urged to the back of the room to peruse
her store, pray in the empty seats or on the side of the room, to the cafeteria
for a Vegetarian lunch with water blessed by Amma, elsewhere to wait for one of
her other programs (yoga, meditation, etc.), to watch others being embraced, or
to leave if you wish. We visited her store and purchased a few items – a
sandalwood mala, prayer card, and I bought a silver OM pendant blessed by Amma.
Then we headed to the cafeteria for the lunch, which was impressively good. If
I recall correctly, it was Dal, a lentil curry, with rice and vegetables.
Now having
SPD, I had some concerns about this entire experience beforehand, one of which was germs – yes, I am a
germaphobe and seeing video of Amma’s shoulder completely stained with tears,
dirt, oil from many people was alarming, which is why we were one of the first
to arrive – I wanted to be one of the first ones in contact with her to avoid
germs as much as I could. lol Another concern was the energy of so many people,
the noise, the smells. I do recall there being some light scent of incense or
sandalwood, but not enough to bother me more than passing irritation. Everyone
was instructed to be quiet and meditate or pray while waiting, so it was rather
quiet the entire time, I think overall we were there 4 or 5 hours. The energy
in the room and from everyone was amazing – it was positive & bright the entire time, without being overstimulating. I
would go again to explore the experience more, and in this day and age, who
couldn’t use unconditional love, a blessing, prayers, or a hug?! Does it make me want to
become a regular follower, no.
Anyway, this was a memorable, positive experience. Sometimes, having SPD I back out of plans, hide from overstimulation, but sometimes, I have to remind myself to get out and experience new things even if a little scary; sometimes they are valuable and full of insight.
Saturday, January 4, 2014
Book Review
I finished reading The Highly Sensitive Person’s
Survival Guide by Ted Zeff. I enjoyed and recommend this book.
The author describes having SPD from when he was in the 5th grade and seems to know what he is talking about. Right from page 20 and then through the entire book there are suggestions of things to try, things I have tried
that have helped to some degree; meditation, visualization, exercise, breathing,
diet tips.
One thing I found interesting is the author is a follower of
Ammachi, aka Amma, and talks a little about her healing touch. She is a spiritual leader from India, known as the hugging
saint a/o Mother and has hugged millions of people across the world. A few years ago my husband, mother, and I went to see her when she was
touring the US and was going to be South of Chicago. It was an intriguing experience I’ll share in my next post.
Thursday, January 2, 2014
The Upside to Sensory Processing Disorder
Believe it or not, there are positives and benefits to
having SPD!
Having hypersensitive smell comes in handy when catching fires before they become problematic, detecting gas leaks, smelling food burning right away before it is inedible, knowing immediately when the dog pooped in the kitchen.
Music can be felt and not just heard. SPD can make meditation a remarkable experience. When listening to guided meditation my entire body feels the vibration of the gong and my breath entrains quickly to slow background music.
Being in nature is amazing. I can smell the dirt, water, leaves, and those aren’t usually overbearing or bothersome. One of my favorite hobbies is nature photography. Seeing & capturing such beauty gives me incredible happiness and I forget about having SPD. Being in nature is the one time my senses give me joy and actually rejuvenate me. I feel as if I absorb the living energy all around and it boosts my sense of wellbeing.
Being sensitive to energy is also good because it helps to weed out negative people who drain your life force, or at least you know who to limit your time around if you can’t avoid them.
When it comes to love & intimacy all emotions and senses are heightened.
Having hypersensitive smell comes in handy when catching fires before they become problematic, detecting gas leaks, smelling food burning right away before it is inedible, knowing immediately when the dog pooped in the kitchen.
Music can be felt and not just heard. SPD can make meditation a remarkable experience. When listening to guided meditation my entire body feels the vibration of the gong and my breath entrains quickly to slow background music.
Being in nature is amazing. I can smell the dirt, water, leaves, and those aren’t usually overbearing or bothersome. One of my favorite hobbies is nature photography. Seeing & capturing such beauty gives me incredible happiness and I forget about having SPD. Being in nature is the one time my senses give me joy and actually rejuvenate me. I feel as if I absorb the living energy all around and it boosts my sense of wellbeing.
Being sensitive to energy is also good because it helps to weed out negative people who drain your life force, or at least you know who to limit your time around if you can’t avoid them.
When it comes to love & intimacy all emotions and senses are heightened.
*You can purchase the above SPD ribbon as a sticker or magnet HERE
Wednesday, January 1, 2014
~Happy New Year!~
I had the most
wonderful Christmas. I took the time & effort
to relax and focus on enjoying our first Christmas in this house. I cooked & ate a good meal, drank
some champagne punch, spent quality time with loved ones. I believe it truly
was the best holiday I ever had. I’m
hoping the new year will bring many days like this Christmas – one where I can
appreciate all that I have, my senses aren’t giving me trouble, and I can spend
time with people who love & accept me. I wish the same for you.
Happy New Year!
Happy New Year!
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